AI summary & topic connections

Describes severe vertigo, pain, cognitive problems, seizures and loss of family participation over many years, alongside diagnoses, medication experiences and frustration with medical care.

  • Neurological symptoms & sleep: “severe vertigo, migraines, slurred speech, chronic fatigue”
  • Housing, work & access barriers: “I couldn’t leave my house”

Matched review of original text; attachments excluded. Review provenance

ORIGINAL COMMENT · UNEDITED TEXT
In the spring of 2006 out of nowhere and what seemed like no reason I started having severe vertigo, migraines, slurred speech, chronic fatigue, chronic pain, my whole body felt as though my skin was on fire. I had a 2 yr old son and one morning I went to get out of bed, however when I lifted my head my world shifted onto its side. I felt as though I had been drinking liquor the night before (which I hadn’t been). My head slammed back down I couldn’t even open my eyes to squint without severe vertigo. My husband rushed me to the emergency room which was not easy since I couldn’t open my eyes, my speech was slurred and wearing clothes felt like torture. Once at the hospital they did several tests and ran several scans. The scans all came back normal, however the hand/eye tests they gave me verified that there was definitely a problem. The doctor told me that I had a case of severe vertigo and they didn’t know why so the doc gave me a shot of liquid Valium and almost immediately I was back to normal. He sent me home with a small prescription of Valium and told me to make an appt with my GP. From that day forward my life was a living nightmare. I was unable to take care of myself much less my 2 yr old son with whom I had done the responsible thing with and had waited til I had been married for 7 yrs was 26 yrs old and was financially stable. Sadly the one thing I had longed for, had planned out meticulously in order to be able to raise my son, give him some siblings and my husband more kids was stolen from me. The next 13 yrs would be one disappointment after another where the medical field is concerned. I slept for days on end if severe weather moved in I would sleep starting the day before it moved in until the day after it cleared up. I lived in excruciating pain going from one specialist to the next begging them to help me then after examination and untold numbers of test they would first offer me OxyContin then it would spiral into me and the specialist screaming at each other. Me yelling at them I didn’t want their drugs and them yelling at me it was all in my head. I finally just started screaming “if it’s all in My head then fix my fucking head!” Oh you’re crazy it’s all in your head. There’s nothing wrong with you. You just want attention . Every doctor/specialist I saw I would ask them what is my body missing that I need or what do I have an excess of that my body can’t get rid of? EVERYONE OF THEM from the nurse, to the physical therapist all the way to the PhD’s would look at me as though I was crazy and then say to me word for word, “ what does nutrition have to do with your health?” I was flabbergasted each and every time! I finally accepted their pain meds at the lowest dose possible. I went from someone who had a photographic memory who scored on her ACT‘s in the one percentile to somebody who couldn’t even read I couldn’t focus. I’m almost 50 years old. I don’t remember my 30s and only the last couple of years of my 40s I miss funerals I miss weddings I miss graduations. I wasn’t there till loved ones goodbye or take care of them. I even allowed them to use an experimental contrast dye for an MRI. I was told I might lose my sense of taste and smell I honestly didn’t care. I should had because after that experimental dye, my symptoms grew severely worse. I couldn’t have conversations with people I couldn’t leave my house and my poor son was having to take care of me instead of me being able to take care of him, my husband lost his partner his friend his helpmate, and was burdened with a woman who couldn’t function. I was having seizures. The pain was more severe than ever. I lost years of my life. I have no recollection of which is another very disturbing thing since I had a photographic memory, I could remember from the age of two and up. The years I had looked forward to the most my son’s childhood I absolutely missed. I have no recollection of! I had been diagnosed with fibromyalgia, PTSD, bipolar disorder, severe migraines, chronic fatigue, dissociative personality disorder. I was taking hydrocodone 5 mg, clonazepam 1mg as needed, gabapentin highest dose possible, fluoxetine and cyclobenzaprine.