Describes EDS and chemical sensitivity, reports disabling pain with wireless devices and improvement with…

I wasn’t diagnosed with my genetic condition, EDS, until I was in my 60s. The Mayo Clinic tests in 2013 resulted in the head doctor telling me “You’re a walking Geiger counter for carcinogenic products.” Then asked: “What’s wrong with Boston hospitals?” Over 100 Boston doctors at all top eight Boston hospitals could not figure out why after being prescribed ZPac for what turned out to be a viral, not bacterial, infection almost killed me. My friend’s father died from Zpac around 2010 when I first became deadly ill from it. Pfizer now has a black box on it warning it can’t be taken when low in potassium. Grateful the Mayo Clinic knew I had Multiple Chemical sensitivity (MCS). In fact, a MGH specialist I met with upon returning to Boston agreed the ZPac destroyed the natural bacteria on my gut. A mycotoxin, Trichothecene, was found in my blood. Doctors warned never let anyone try to remove it as you could die in the process. I documented everything when I got strong enough when this happened. It was on Care Pages publicly available. A doctor in China read it and her daughter helping me let me know two years BEFORE our doctors. My medical condition results in a reduction in oxygen to the autonomic system of the brain because the molecular size of the carcinogenic chemical reduces the amount of in my blood getting into the autonomic system that controls everything the body does naturally. I DO NOT NEED TO “SMELL” the carcinogenic chemicals. My body reacts before any ability to even think of getting away from the chemical. My tongue swells, I have difficulty breathing, I lose my voice and if the amount of some chemicals are even a minuscule amount then I can’t move. Top MGH doctors have now witnessed this happen and after providing oxygen up to 15L one group of hematologists asked “Can you please explain what happened? We’ve never witnessed anything like this.” I keep my laminated Mayo and MGH diagnosis letters with me in case I can’t speak and need oxygen. My prescription is with them. BTW: That incident was due to MGH four page phamplet that had just come out of the box so the ink, a petroleum product, had not aired out yet. What’s this got to do with EMFs? Well, when I got better in 2010, I went to the Apple Store thinking the Apple Watch might help me if I fell and couldn’t call 911 during an exposure to carcinogenic chemicals. As soon as the salesperson put that watch on me, I called out “get it off! Get it off!” The pain shot up my arm. I already knew I couldn’t hold my iPhone unless it had a good cover on it to protect me from EMFs, but hadn’t considered the watch emitted EMFs. It was only just a few years ago that I realized the disabling pain up my arms was from my laptop! I tested out if using a computer hardwired connected, and not on WiFi caused such disabling pain. It didn’t. The computer using WiFi emits EMFs that physically cause disabling pain. Years ago I shared my willingness to speak to federal researches, and even speak to Congress on the physically disabling consequences of exposures. Congressman Stephen Lynch, a friend of mine, actually witnessed my disability at our Milton Town Meeting. It was years ago; however I’m sure he’d remember pushing open the exit door and the EMTs catching me from falling because the chair was at that door. He saw I was on oxygen. Those with MCS react to many petroleum chemicals and other known carcinogenic chemicals. Why are they used and why are EMFs allowed at limits that disable us? We don’t need to find a cure for cancer. We need to STOP causing cancer! Please send me your final report and call should my testimony help. In fact, my 7yr old cousin passed away some 33yrs ago from a connective tissue disorder. EDS is one type so we’re checking others for EDS which has many, many different comorbidities. In fact, her home was under high tension wires! Thank you for reading my honest report, Diane DiTullio Agostino 617-834-4848