{"id":"HHS-OASH-2026-0397-3975","number":"3975","name":"Jason Hidenrite","organization":"","posted":"2026-10-21T04:00Z","received":"2026-10-13T04:00Z","body":"HELP BRING AWARENESS TO CIVILIANS WITH HAVANA SYNDROME!  \n\nPLEASE REPOST and tag Sec. Kennedy \n\nOpen Letter to HHS Sec. Kennedy: Direct CDC to Act on Havana Syndrome in the U.S. Population\nOctober 7, 2026\n\nSecretary Kennedy:\nDid you know that as you are reading this letter, your CDC is arguing in federal court that it has no duty to act on Havana Syndrome in Americans, and that no court can make it?\nI am a physician who maintains a civilian registry of patients diagnosed with Havana Syndrome, which federal agencies call anomalous health incidents (AHI). In 2025 I petitioned CDC to treat AHI as a civilian public health matter. CDC replied only that the request \"falls outside the agency's purview to respond, so did not respond,\" and forwarded it to the National Institutes of Health. NIH has not responded. In Ber v. CDC, No. 8:26-cv-01822, the government moved on October 5, 2026 to dismiss, arguing that CDC has no legally required duty to act.\nThink of the optics. Your CDC is telling a federal court that a novel medical condition affecting the U.S. Population, including children, confirmed by expert physician diagnoses and causing severe neurological harm, is not its concern, and it is prepared to defend that position through legal maneuvering.\nYou can fix this in one decisive sweep. You can direct CDC and NIH to:\n1.  Publish a Havana Syndrome (AHI) case definition in MMWR.\n2.  Establish a civilian reporting mechanism, as CDC already has for its own employees.\n3.  Add Havana Syndrome (AHI) to national surveillance.\n4.  Open an NIH civilian AHI research program with a funding opportunity.\n5.  Name an HHS Havana Syndrome (AHI) coordinator.\nNone of this needs new legislation or prejudges cause or attribution. These patients are asking to be counted and studied. Your CDC says it has no duty to act; your NIH has not acted. We are fighting this in court, and I respectfully ask you to do your part.\nLen Ber, MD\nMedical Director\nCivilian Registry for Diagnosed Havana Syndrome Patients\nCivilianRegistry@protonmail.com","attachments":[],"attachment_inventory":true,"withheld":false,"source":"https://www.regulations.gov/comment/HHS-OASH-2026-0397-3975","tags":["child-development","research-evidence"],"source_hash":"be4869bb8eb67da3eafafce688cc83ae078f3afdf7ad7736d9823f9558690a8c","slug":"child-development-comment-3975","classification":{"id":"HHS-OASH-2026-0397-3975","body_sha256":"7436f222af4bd3f281884be378f4cb2605827c13e7fd01801a6c75d561bc857b","status":"ai_reviewed","primary_topic":"ahi","topics":[{"id":"ahi","evidence":"er to HHS Sec. Kennedy: Direct CDC to Act on Havana Syndrome in the U.S. Population\nOctober 7, 2026\n\nSecretary Kennedy:\nDid y"},{"id":"research","evidence":" (AHI) to national surveillance.\n4.  Open an NIH civilian AHI research program with a funding opportunity.\n5.  Name an HHS Havana Syndrome (AHI"},{"id":"children","evidence":"cal condition affecting the U.S. Population, including children, confirmed by expert physician diagnoses and causing severe neur"},{"id":"neurological","evidence":"ed by expert physician diagnoses and causing severe neurological harm, is not its concern, and it is prepared to defend that position "}],"summary":"The submission reproduces a physician’s letter requesting a civilian Havana syndrome case definition, reporting and surveillance, NIH research funding and an HHS coordinator, and describes related litigation.","reviewed_at":"2026-10-21T23:43:28Z","review_method":"Complete submitted comment-text review with neutral attributed summaries and exact evidence; attachments and external materials not reviewed.","review_source_sha256":"32eeac335f1885fee591075addf948b63bcc7683e85770a9dc89964f20db9d69","source_url":"https://rfsafe.net/hhs-comments/data/catalog.json","scope":"Original comment body; attachments excluded"},"forum_topics":["ahi","research","children","neurological"],"primary_topic":"ahi","forum_title":"The submission reproduces a physician’s letter requesting a civilian Havana syndrome case definition, rep…"}